Why Patient Centricity Matters
Patient centricity has moved to the forefront as a far-reaching movement within clinical trials. Understanding the patient perspective is essential to advancing the patient experience.
香港六合彩资料 builds technology for patients, inspired by patients. Structured around three core principles of patient centricity 鈥 design, engagement, and activation 鈥 our patient advocates are active participants in the development of our solutions.
As we improve the overall trial experience, we power patients, sites, and sponsors with the industry鈥檚 only end-to-end decentralized capabilities.
Watch our Patient Advocates on the future of聽decentralized聽trials.
Voices of Patient Advocates
- NCI and grant proposal reviewer
- Invested in incorporation of digital tools and wearables to capture聽RWE
- Dedicated to defining realistic and inclusive eligibility
- 鈥楨ngaging patients early and often leads to better trial design.鈥
- Known as the 鈥淐ancer Research Evangelist鈥
- Mission: connect key influencers to forge partnerships to focus on聽research
- Director of Community Relations at FRAXA Research Foundation
- One Platform, One Portal is a genuine, home base for patients
- Developed the Survivors Advising Scientist Education Program (SASEP)
- Advocate leader for the Ovarian Cancer Research Alliance (OCRA)
- Decentralization provides time: for family, for life outside a聽trial
- 鈥榃earables (DHTs) foster relationships and connections.鈥
In Memoriam*
- Served on the board of the Israel Cancer Research Fund and聽LUNGevity鈥檚 Advocacy Council
- Was a frequent presenter for Harvard Medical School鈥檚 Executive Education聽program
- Maintained Outliving Cancer for the Terminally Optimistic blog
- 鈥楶atient engagement and education supports patient commitment.鈥
* Linnea Olson passed away in November 2021. She was a fierce advocate for the lung cancer community and participated in 6 clinical trials. Linnea鈥檚 spirit of advocacy will always live on.
- A Stanford Medicine X founding ePatient scholar
- Alumna of the AACR鈥檚 scientist Survivor Program
- Patient advocate leader serving a global audience
- 鈥楶atient perspective is crucial: we are participants, not subjects.鈥
- Two-time Stanford Medicine X, Healthevoices, and PCORI iPatient聽Scholar
- Blog Luck Fupus educates and empowers patients
- Passion: to make being sick more palatable for patients
- Strong believer in the positive impact of seamless experience
- Decorated US Air Force military veteran 鈥 served for 25 years active聽duty
- Advocates to raise awareness about racial disparities on standard of聽treatment
- Education is essential to engage and protect patients
- 鈥楧ecentralization enhances quality of life.鈥
Decentralized Technologies to Power Patient Centricity
FOR PATIENTS: Engagement and Activation
- Seamless patient experience on the my香港六合彩资料 patient platform
- Preparation for participation
- Patient-centered communications and alerts
- Long term follow up and safety monitoring
FOR SPONSORS: Proactive Outreach, Expedited Execution, and Patient-Centered Long聽Term Follow Up
- Alert patients with sponsor-driven communications
- Introduce new clinical trials to targeted patients and pre-screen for improved referrals
- Gather patient insights for protocol feasibility
- Engage patients bridging from Phase 2 or 3 to Phase 4 long term follow up studies
- Post-trial LTFU and Safety Monitoring
- Provides a greater overall picture of the patient’s clinical profile
FOR SITES: Improved Relationship Management
- Unified platform experience from patient identification, study execution, and end of study communications
- Provides sites with greater access to baseline and historical clinical data to understand the patient’s medical history and give important insights to foster communication
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